Dear Friend,

September is Childhood Cancer and Sickle Cell Disease Awareness Month. The coming weeks are a time to honor survivors, patients, families, and caregivers. We invite you to join us in supporting every child and family affected by childhood cancer and sickle cell disease.

Hear from Sara Lohse, a mom who describes her daughter Madi’s leukemia journey not as a battle won by sheer strength, but as a daily act of quiet perseverance, accepting help, and holding onto hope even during the hardest moments. Sara and Madi’s story reminds us that resilience often means simply showing up, letting others in, and taking each day as it comes.

Pain can be a normal part of cancer treatment. Nicole Alberts, PhD, and her colleagues’ research shows that some adult cancer survivors have pain that lasts after treatment ends. Chronic pain can impact daily life and emotional well-being, and managing it requires a holistic approach. Alberts encourages survivors to speak up and seek support for their needs.

For young people navigating cancer, writing can be a powerful tool for reflection and healing. Trisha Paul, MD, MFA, shares advice that she has learned through her work with teens and young adults with cancer. She advises young patients and survivors to be honest, take their time, and express themselves in whatever way feels right.

Finally, Akshay Sharma, MBBS, MSc, shares common myths and facts about sickle cell disease, from pain management and school challenges to new treatments and the importance of support.

In hope and honor,

—The Together by St. Jude™ team