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Explore genetic testing insights, sibling bonds, health insurance, and HIV narratives.
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Together by St. Jude logo

April 2025

Dear Friend,


Spring is in full bloom in Memphis. This month, we bring you stories of unexpected paths and inspiring resilience. Learn about genetic testing, sibling support, HIV treatment, and health insurance.


Genetic testing can help you identify inherited risk for cancer as a result of a genetic condition. Whitney Jones is the mother of 2 boys with a genetic condition that resulted in cancer. She writes about her family's experience with genetic testing and offers advice to others thinking about it for their own families.


When Lucy Haughaboo was 8 years old, her sister was diagnosed with skin cancer. Read her blog post and learn about a sibling’s unique and special role in providing normalcy and support during childhood illness.

Martin Ribulotta was diagnosed with astrocytoma when he was an infant. More than 20 years later, he is still dealing with health problems from his cancer treatment. Read helpful tips from Ribulotta and 2 experts on navigating health insurance as an adult.


Did you know St. Jude Children’s Research Hospital has been a leader in HIV clinical research for children and youth for nearly 4 decades? Discover the powerful impact of this work through the personal stories of 3 young people who have participated in HIV research.


Finally, I want to thank our External Advisory Board for their support in advancing and growing our program. On April 3, we held a virtual meeting to discuss our global outreach efforts, social media strategy, and translation plans. We are thankful for our advisors’ commitment to our program. Their insights and guidance are invaluable to us.


With hope and support,


Daniel Bastardo Blanco, PhD

Manager, Together by St. Jude


Young man on a stage with a microphone.

A Family’s Journey Through Genetic Testing

The Jones family's journey with their youngest son's rare brain tumor led to the discovery of a genetic condition affecting their family. Genetic testing then revealed their older son also had the genetic condition. This finding led to the early detection of a hidden tumor in their older son’s kidney.

Read their story
Older sister holding cat and younger sister looking up.

My Sister Is Still My Sister

Learn how the bond between sisters Lucy and Alice grew after Lucy found out that Alice had melanoma. In her blog post, Lucy talks about the love and strength they discovered during the tough time of dealing with childhood cancer.

Read her story
Young man on a stage with a microphone.

How to Understand Health Insurance

Navigating health insurance as a childhood cancer survivor can be difficult due to increased medical needs and potential coverage hurdles. Understanding your insurance plan and how to appeal decisions is important for getting care and minimizing stress. Learn health insurance strategies from a childhood cancer survivor, a psychologist, and a legal expert.

Get tips on health insurance
Comic graphic of three people with a red ribbon.

Experiences of HIV Treatment and Prevention

Progress, a St. Jude digital magazine, brings us firsthand accounts of HIV treatment and prevention through the compelling stories of 3 patients and research participants at St. Jude Children's Research Hospital. Their experiences offer a powerful look into the realities of living with and preventing HIV.

Read and listen to their stories

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